Twelve

I started a blog post a few nights ago about evaluating pump sites.  As I wrote it, some interesting things occurred with the numbers and like I am prone to do, I was off on a tangent.

I always liked math.  I loved algebra and geometry.  When I was a little girl I would actually dream about math problems and shapes.  Later, I took my appreciation of math and interest in art as a sign to go to architecture school.  Looking back, it was ridiculous that in my extremely sheltered world, I was supposed to be picking such a specific field of study and life path, at 16 years old, however at 12 years old, I knew I wanted to create.

As long as I can remember, my favorite number has been 12.  I recall a teacher saying that a favorite number should be a single digit.  What did she know, right?  On sports teams, I always tried to get “12” on my jersey.  In architecture school I always tried to group design elements in derivatives of 12.  When I write any list, I will keep adding things until I get to 12.  My first and last name are both 6 letters.  My career started with a company that was also a 6 and 6 name.  Yep, 12.  My current business is two 6 and 6 names.  Again, 12.  Most of the time I act like I’m 12.  Twelve.  What can I say, I just love it.

So in my post about pump sites, I started doing the math.  I took shots for 21 years (12 backwards).  I have been on a pump for 12 years.  I have had a Dexcom CGM for 12 months.  With my warranty expiring on both my Animas PING pump and my Dexcom 7+ in the next few days, I have been filling out paperwork to get new versions of both.  “12” keeps popping up all over the place.  I had to ditch the pump site topic.  Twelve was calling to me.

In grade school we did the project envisioning where you will be in the year 2000.  I used to change that topic to the year 2012.  Flying cars and my Jetsons-esque lifestyle haven’t quite happened.  Diabetes hasn’t been cured.  I don’t have kids.  But, I’m still here to celebrate 12.12.12.  That counts, I AM HERE for 12.12.12.

Happy 12.12.12 to all of you.  I hope you get a chance to make it special.

 

Do Good, Feel Good

Do Good, Feel Good is a phrase I say a lot.  I probably tweet it even more often.  It’s one of those phrases that just sticks in my head and plays over and over (kind of like The Cranberries’ Zombie or recently Kris Kross’ Jump.  I’m sorry if you now have these songs sticking in your brain too).  I digress.  Oops.  Yes, Do Good, Feel Good.

When I researched getting a CGM, specifically my Dexcom 7+, I started reading diabetes blogs in a mildly obsessive way.  That was my introduction to Kim from Texting My Pancreas.  Her blog led me to other wonderful diabetes blogs.  When I decided to bite the bullet (well in this case, let my boyfriend attempt to insert the Dexcom into the back of my arm), we watched her video twice possibly without blinking.  When I put the Dexcom in my arm the first time solo (I’ll admit it, I was scared), I watched that video two more times (this is the part where I must mention she has better gravity where she lives).  Anyway, Kim was a big help to me and I frequently refer to her in my diabetes mentoring program when questions about CGMs arise.

Kim started an “event” for the month of December called Give All The Things (you really should click that to see what I’m talking about).  I was immediately more smitten with her than I already was.   I won second place at the very beginning of the month of giveaways.  I won a small plush pancreas.  Oh you don’t know what a plush pancreas is?  Well you can see it here.  It made me laugh but it got me thinking about Kim’s pay-it-forward idea, an idea I try to incorporate into my own life.  I contacted Kim and told her a little about my jewelry design business and it’s connection to my fundraising walk teams, Alecia’s Stem Cells.  I offered to give her a pair of earrings for her giveaway.  Although it is not totally diabetes related, the jewelry IS made by a T1D (me) and 10% of the proceeds go to JDRF.  Kim wrote the sweetest note back.  It put a big goofy grin on my face.

Today Kim is giving away the earrings at Texting My Pancreas.  I saw the tweet about it this morning.  I immediately smiled.  What started as an overwhelming day still is overwhelming, but her post lightened me. Twice I have checked the comments (which is how you enter her contests) and both times I smiled more and “may” have had some extra moisture escape my eyes (must be allergies, I certainly am not crying again, right?).

If you have some time, check out the comments of some of her other Give All The Things posts.  It will immediately remind you how fortunate you are to be part of the DOC.

Do Good, Feel Good.  Thanks Kim.

Wordless Wednesday, Hoarding

While searching my purse for some notes I’d taken, I found yet another secret compartment.  Here are the contents: One Touch Ultra used test strip (AKA diabetes jewelry supplies), used Dexcom 7+ sensor (AKA hey-can-I-make-jewelry-out-of-this-? supply), iBGStar USB demo, 1 slightly crushed Skittle.

Standard diabetes paraphernalia, no?

What A Day, What A Week!

So many exciting things to blog about but short on time (it’s my theme right?… Well that and decorated Dexcom sites).  Today is/was World Diabetes Day!  This month is Diabetes Awareness Month!  Exciting things are happening all over the place!  I’m doing some exciting D stuff tomorrow, but I leave you all with this photo taken while I jumped around like a kid at the corner of my street (yes, I felt proud):

Indeed, the Empire State Building is Blue tonight in honor of World Diabetes Day (the traffic light is just an added bonus)!

STOP Diabetes! Empire State Building.

 

 

Did you see it?

I see a lot of posts from my fellow diabetics about test strips found in the wild.  A test strip found on the floor of a cab.  A test strip on a hiking path.  Diabetes trash.  Hansel and Gretel, gone diabetes style.  I never ever see these mysterious, elusive test strips, ever.  If I find a test strip in my shoe, it’s mine.  A test strip in my tights (that actually happened once), it too is mine.  No great mystery around here.

Tonight I was meeting up with a friend.  Two subways should have taken 24 minutes to get me to my destination (yes, 24 minutes).  My first train was delayed and I was going to be late.  I HATE being late.  While I waited for the connecting train, I paced the platform.  I looked down.  Dear non- New Yorkers, this is often the moment you see a rat or mouse on the tracks.  Guess what I saw?  Nope, not a rat.  Nope not a mouse. A syringe!  

For a second my heart skipped a beat.  A DIABETIC WAS HERE!  I grabbed my phone. I felt silly but I snapped a quick photo and then I realized it.  My heart skip knew better too.  That syringe probably didn’t belong to a diabetic.  It wasn’t the tool of my people.  A test strip in the wild = a diabetic has been here.  A syringe in the wild = who the hell knows?

The test strip hunt continues.

Bangle?

A few weeks ago I made two rings out of used OneTouch and OneTouch Ultra test strips (side note: I have been using a OneTouch Ultra meter with my Ping pump for YEARS and YEARS. Finding 2 old regular OneTouch strips (black ones) in the bottom of a drawer proves I need to do some serious house cleaning). This idea has been in my mind for awhile, years maybe, but it wasn’t until a DSMA chat about the upcoming Diabetes Art Day 2012, that I finally made some ring designs.

The response to the rings has been pretty incredible and encouraging (OK not totally true but to the lady who said they were “ugly”, I feel that diabetes isn’t pretty either so I couldn’t really take it as an insult, more poignant to what I’d designed actually). OneTouch contacted me for permission to use one of my images on their Facebook page for a post about Diabetes Art Day which was pretty cool. Anyway, since Sunday afternoon/evening is when I plan to clean-up but lately has been my messiest time of the week, I got my designer groove on today.

Here’s a preview of my next OneTouch Ultra Used Test Strip Jewelry experiment (It’s going to be a bangle bracelet… well if this actually works)

Phase 2:

 

 

 

 

 

 

Phase 3:

 

 

 

 

 

 

 

 

Phase 3+

I’d Rather Not Think About It

I’d like to preface this post by explaining I have lots of exciting, super-duper exciting things to post about, but those will have to wait for now.  This past weekend was a big one, but there was a big bump in the road (yes I just typed “pump” and stared wondering why it was the wrong word. Diabetes much?).

Friday, I ate lunch.  A few hours later, I puked like crazy & could not have been colder (not as bad as Pukefest 2012). The doctor on-call for my doctor sent me to the ER.

At the ER, a nurse took me into Triage quickly. Dexcom said bg was 277.  Hospital meter said 324.  I had been running between 77 to 126 all day even while puking.  Dehydration was kicking my butt.  After getting my vitals, I explained to the nurse everything that had and was currently happening to me, I concluded by saying I needed to take a correction.  She told me not to.  Actually she said she could not advise me to take a correction.  Ummmm what?!?  She said I needed to wait for a doctor.  Ummmm more what?!? This is the same woman who, when I showed her my pump and Dexcom, asked if they control each other.  I explained it isn’t a closed-looped system.  That did not help my cause.  She asked if my blood sugar is normally that high.  I politely explained my current HbA1c is a 6.4 so NO my BG is NOT NORMALLY 324!  I was told again NOT to take any additional insulin, was handed a puke bucket and sent to the waiting room.  I immediately took a mini correction.

30 minutes went by and I felt less nauseous (believe me there was nothing left in my system).  I started to feel desert-like thirst though.  Time did that thing it does, you know, ticking by. I took another mini correction.  BGs eventually in upper 200s and staying steady.  No one had checked on me.  They’d told me NOT to take a correction until I saw a doctor, they knew my most recent BG had been 324, and they LEFT ME!   I sipped diet ginger-ale I’d brought in my bag.  Baby sips.  I seethed.

I finished my drink.  I waited.  I needed a hand (well an arm) to get to the reception desk.  The woman who checked me in (not triage) explained there were people with more serious emergencies and that would delay my seeing a doctor.  Fair enough.  I told her I needed to take more insulin and explained I’m diabetic, on a pump, on CGM, blah blah then I stopped because I didn’t think I was connecting with her.  I apologized (not sure why), and asked if she was a nurse.  She was less than pleased but since she hadn’t been responding I wondered if my T1D/puking chatter was clicking.  Yes, she was indeed a nurse.  She said my vitals were good.  She told me I was looking at a 3 hour wait.  Ummmm what?!?  I needed fluids.  Give me the IV and I’ll figure it out myself out.  3 hours?!?  3 MORE HOURS?!?  So I explained, for the record, I was taking a necessary correction.  She told me not to.  I told her she was too late.  She said they didn’t want me to crash.  I said that wouldn’t happen.  I got feisty in my I-am-wearing-pajamas-with-multiple-sweatshirts-and-why-are-my-legs-wobbling-so-damn-much way.  I told her I’d been diabetic for 33 years and “they” could not expect a T1D to sit for 3+ hours with a high blood sugar and do NOTHING about it.  I *may* have even tossed out the word insane.  She explained they needed me to NOT take a correction so the doctor could see what was going on with me.  I could feel the heat in my neck.  I stayed calm (well calm-ish).

Then she said it, “They need to make sure you aren’t going into DKA.”

In my mind I may have punched her.  In my mind I also shook my head in disbelief like a cartoon character.  In my mind I stopped shaking my cartoon head and punched her again.  I leaned across the desk and slowly explained that if you tell a diabetic who’s blood sugar is in the 300s and escalating, NOT take a correction bolus while they continue to dehydrate, you will have bigger problems than possible food poisoning.  She argued back about not crashing.  I was about to crash her.  I tried to sound strong but I’m pretty sure my voice shook as I informed her that without a correction, there was no doubt they would be treating me for DKA.

We waited and waited.  No one EVER checked on me.  No additional BG checks.  My BG hovered between 185 and 194.  I’d take that.  Exhaustion was kicking in.  4 hours after I’d checked-in, I was taken into treatment.  A gurney in a hallway with another patient at my feet and another patient at my head.  A doctor arrived.  He was familiar with my story.  He may have been Doogie Howser.  I told him about the correction debacle(s).  I informed him of my present BG.  He told me that he felt T1Ds on a pump know more about their diabetes than they do so I should continue just doing my thing.

arm-IV-768x1024 copy

 

I got an IV like a harpoon.

Yeah I got pics.

I was there FOREVER.  Anti nausea stuff and fluids perked me up.  The head doctor visited.  I got sassy as is my way, and we all smiled.  I told him the correction debacle.  He repeated what Doogie had told me, that I know more than they do about my diabetes, keep treating myself and they will treat the rest of me.

 

I continued checking my own BGs.  I saw some crazy stuff go wheeling by.  I got silly.  I was sent home at 3am.

 

Few Items….

Few items for today:

1. If you are in the NYC vicinity, I will be interviewed tomorrow morning by Cindy Hsu (Saturday 9/29) at 6:45am to promote the JDRF NYC walk on Sunday 9/30.  I can’t image my speaking smoothly live, so it may be worth watching just for a laugh.  If you have ever walked with our Alecia’s Stem Cells JDRF team before, be prepared, because CBS is planning on using photos from our archives during the interview and just may see your own smiling face!

2. OneTouch contacted me early this week about my Diabetes Art Day submission and using it on their Facebook page to introduce a post about D Art Day .  Although some of the comments gave me a frown, (hater-betics), I am really thrilled and have been wearing the ring everyday since D Art Day.  I’ve had some pretty interesting conversations with strangers regarding diabetes and the ring.  I feel incredibly inspired to keep playing with this test strip/ jewelry concept.

3. Our walk team not only has 56 walkers (OMG say WHAT?!?!) but we have raised $19,321.62 with 2 days still to go!  Take that diabetes!

 

Blue Friday- Tweet Tweet

This Dex has definitely seen better days and this morning was more unstuck then stuck to me.  Tomorrow will be a fresh start with a new sensor but for today, I give you my version of Blue Friday.  My co-worker just informed me today’s design is her favorite, so far.  Obviously this only encourages me to top my own Dex decorating ways.

Happy Friday. xo