It’s been a challenging couple of weeks. My steady stream of shirty BGs have proven that bronchitis and diabetes are a horrendous combination. My health has started to improve in the last 3 days. These pics are from yesterday. That 125 made me want to cry with joy. That line looks divine. Scrolling back, you see the real story. It isn’t pretty, it certainly didn’t feel good, but it’s part of my diabetes story. Keep trying, keep trying.
Tag Archives: diabetes
Memories AKA My BIG Announcement – Wednesday 5/15
I am writing these #DBlogWeek entries out of order (shocking, I know) and managed to completely miss yesterday (Tuesday’s) post. I’ll get to it.
If you’re interested in learning more about Diabetes Blog Week, go here. If you are interested on reading other diabetes blogger’s entries on the topic below, check THIS OUT (believe me, this will introduce you to some really great people in the #DOC and keep you very busy).
Today we’re going to share our most memorable diabetes day. You can take this anywhere…. you or your loved one’s diagnosis, a bad low, a bad high, a big success, any day that you’d like to share. (Thanks to Jasmine of Silver-Lined for this topic suggestion.)
I’ve been mulling this question over for days. I tend to be a look-at-the-bright-side-of-life thinker. I thought about some of my BIG diabetes moments and how I simply don’t remember them and what a good thing THAT is. Like when I was a little girl and had a severe hypo (unconscious and seizing) in my parent’s bathroom. Glucagon given, the ambulance didn’t show up in time, a local police lieutenant friend of my Dad’s arrived and transported me to the hospital, sirens blazing, while I practically cut my Dad’s index finger to the bone. My jaw had locked on my Dad’s finger as he was trying to keep me from choking to death. Nah, that’s not the kind of stuff that defines my life. That’s not my memory anyway. It is a horrific memory for my parents.
The guy who almost lost a finger:
What about the time in 5th grade when a school assembly was changed? Being on Regular insulin as short acting insulin didn’t encourage schedule flexibility (but at the time, that’s as far as technology had gone). I played the violin (terribly I might add) and orchestra practice was also changed because of the assembly change and well, you can see where this is going. My morning snack was thrown off, I don’t recall lunch, and apparently in one of my classes, I stood up, declared I loved one of my classmates, and dropped to the floor. My teacher tried shoving juice and food down my throat, although I was unconscious. THAT was a bad idea. I don’t remember any of this. I remember the assembly and waking up the next day in the hospital and puking like crazy. To this day, I have no idea who I declared I loved in my 5th grade class. My Dad must have scared the sh-t out of my classmates too because no one ever told me, they never brought up what had happened, and they sent me cards. Nope, this is not my diabetes memory, this is just a sad and scary blur.
I want this to be a good memory blog post. A REALLY good memory. My memory is from YESTERDAY. Yep, less than 24 hours ago. I hadn’t planned to mention this until everything was finalized but let’s face it, THIS keeps drowning out all my other diabetes success and failure stories in my own mind. If you know me or have ever read my blog or seen my tweets, you know how diligently I have worked over the years with JDRF. I am incredibly proud of my JDRF Friends and Family Team, Alecia’s Stem Cells. I am amazed by all the places we’ve walked (NYC, Boston, LA). I am in awe of all the people who tirelessly support our team and me. I am grateful to my parent’s for getting involved in JDRF when I was diagnosed in 1979.
I was fortunate to attend a JDRF Research Update last month presented by the president of JDRF, Jeffrey Brewer. I loved hearing about where the money is going, the technologies and research. I found it energizing. The timing couldn’t have been better as a month prior, it had been mentioned to me that I was a possible candidate for my local JDRF branch’s BOARD. Say what?!
Jeffrey said something that has been swirling around in my head for weeks (well actually he said a lot of somethings like when he spoke about micro occlusions in pump sites that go undetected by the pump which makes PERFECT sense to me). He talked about how the next generation of insulin pumps combined with CGM technologies are available in EVERY OTHER FIRST WORLD COUNTRY BUT OURS (oh yeah, I live in the US). He also spoke a bit about the FDA, lobbyist, and JDRF’s involvement. In my mind, these are the things I want to be involved in. As much as I truly enjoy my roll as a diabetes mentor and spreading diabetes education, I believe there is a next step for me. I want to be part of the change I wish to see in the world.
So yesterday I had lunch with the head of the nominating committee at my local JDRF. We had a lot in common and I didn’t hold back my opinions on my local chapter’s direction and off the cuff ideas for increasing involvement and community awareness. I am, by nature, a do-er. I am a planner. I love having goals. I’m also pretty nerdy and creative.
This morning I received all the forms I need to fill-out and the invitation to the meeting where my new role as a Board member will be announced in June. I cried when I called my parents yesterday to tell them. There have been a few instances in my life where I truly felt I had a calling to do something. This happens to be one of those moments in my life and it happens to be my diabetes memory.
Share and Don’t Share – Monday 5/13/1
Last year I wrote my first, real Surfacefine blog post during Diabetes Blog Week 2012. I am thrilled to be able to participate again this year as well. For more information on the 4th Annual Diabetes Blog Week (and be prepared to read some really fantastic posts from a variety of perspectives, Check this out http://www.bittersweetdiabetes.com/2013/05/diabetes-blog-week.html :
Here’s today’s topic:
Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see? (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)
Wait a second! Does the blog reading cut into our 15 minutes of seeing our medical team? If so, I’ll just copy the bullet points I read off my phone during my appointments and make those questions into my next blog post!
Alright this is serious, so here goes: My Endo is a T1D. She has been diabetic longer than I have (I was diagnosed in 1979). She is married and has two kids. I knew her long before all of that. I’m pretty sure as a fellow T1D, there would be nothing shocking or even surprising about my blog (well actually that I crack jokes when I write but I don’t have time for that when I see her) Although I have joked in the past that meeting with my endo is like this:
http://www.youtube.com/watch?v=NeK5ZjtpO-M
I appreciate that my endo is a T1D too. When I was kid and had been a T1D for a few years, my family switched pediatricians. Yep, we switched to a pediatrician who was a T1D too (what’s up Dr. Selig?). Guess what else? My podriatrist is a T1D too. Do you sense a theme here?
I don’t have anything huge that I would want my doctors to see or not see if they read my blog, BUT if the question were about my health insurance company, then yes, I have a strong opinion on this one:
Dear Health Insurance Company Who I Will Not Name Because As Much As I Fight You, I Also Fear You,
Do you remember last year when you sent me a letter about how I should be getting regular A1Cs and then explained what an HbA1c is? Do you recall how the letter pointed out that I am missing items/tests for “good” diabetic care? Do you also remember that I chose to ignore it instead of confront you on how insulting it was? I did that because you scare the hell out of me. You and I both know I am on a private plan since although I work in a partnership, I am the only one who needs health insurance (as in: others have spousal health insurance or Medicare). We also probably both know that I have found alternative plans over the years but what I would save in premiums would be spent covering deductibles, so here we are.
We started together for a few reasons, but the most important one was my opthomologist had switched plans and I had to scramble. I hope to never know how low I would sink to keep seeing my opthomologist (his group treats a celebrity with diabetes. If that doesn’t matter to you, great. It is a HUGE vote of confidence to me). My primary care physician is also part of your plan and she’s got a great working relationship with my endo so that’s an added bonus. You know who doesn’t participate with your plan? My Endo! Crazy right? Especially because she DID participate with your plan, left her hospital, went into pharma sales, came back to another hospital about 30 blocks away and I am happily back under her care, but she isn’t one of your plan’s endos.
At one point I saw 3 endos in your plan. 1 is my current endo. Another was a very young doctor who although “nice” she seemed to want to be my friend more than my doctor. I stuck with her for awhile although I questioned her T1D experience. She left for a pharma job too. I even had an appointment with her replacement. It became very clear that not only did I know more than he did, BUT that he couldn’t answer ANY of my questions.
So Insurance Company, I have given you the benefit of the doubt with that letter of yours about what I’m doing wrong with my diabetes care. I pay out-of-pocket to my endo. I am beyond lucky to be able to do that. I get all blood work done a week before my appointments, with a prescription, at one of your labs. I don’t get any labs at all done in her office like her other patients. For all you know, I do not see an endocrinologist at all… EXCEPT you pay for my blood work at your labs. You pay for my HbA1c and microalbumin tests. The prescription for the tests and the results come from and go to that very doctor who is not part of your plan. You can continue acting like I don’t see an endo. You can pay for my Dexcom which had all the proper paperwork for medical necessity as did my pump. You can keep covering my ACE Inhibitor under my prescription plan too. You can keep seeing these prescriptions come through my endo’s office and you can remain clueless when I tell you I wave my right to have YOUR on staff nurse (with no specialty in diabetes) review my case to perhaps give me some pointers and recommendations.
Getting back to the question above, my dear health insurance company, you can raise my rate $100 a month EVERY year for 4 years running, and I will work harder to make more money too. I don’t want you to ever see I have a blog. I don’t want to be anything more that a code number to you. I don’t want you to know about my challenges and victories as a diabetic. I will fight you over billing errors, but I don’t want to ever be on your radar. I will spend hours trying to figure out how to work with you and when or if that doesn’t pan out, I will spend those same hours working around you. I’ll keep signing the checks, and take care of myself. You keep making your “suggestions” so I’ll mock you in my blog.
xoxo,
Surfacefine or perhaps Diabetes Batman would be a little more secretive.
Wordy Wednesday – Missing A Cape
Every diabetic (regardless of type) knows the importance of heart health. At the risk of sounding harsh and/or critical, if you are diabetic and NOT concerned about your heart and circulatory system, then I hope the rock you are living under is warm and cozy.
Months ago, in the depths of winter, Cherise hosted a DSMA chat (diabetes social media advocacy chat) about exercising during the cold winter months and how do we stay motivated. I ended up in a conversation during the chat with some of my #DOC Dweeps (diabetic Twitter friends) about keeping each other motivated and that I would essentially take the role of “Drill Sargent”. Our group has grown over the months and there are so many “@” names on the tweets that there is barely room for a message (140 characters is clearly not enough). It is not particularly organized but the tweets are a great reminder to keep yourself moving and nice little pat on the back from your friends.
This morning it was POURING rain here in NYC. I had plans to be at the gym before work. I packed up my bags, put on my rain gear and sloshed through puddles on my way to the gym, quickly realizing that the rain was already IN my boots, soaking through every layer of my clothing and my umbrella was serving as little more than a lightning stick. When I arrived at the gym, my fingerprint wouldn’t register at check-in because water was pouring out the cuffs of my raincoat sleeves. It’s funny that I considered this a problem because about 1 second later I discovered a far greater problem, I’d worn my rain/snow boots and FORGOT my sneakers!
There was no chance to run home and get my sneakers, workout and make it to work on time, even if I skipped a shower (EWWWWW). Some quick thinking and a bunch of questions later, a decision was made. I believe strongly in commitments. I believe in having goals. I believe in ME (even if I don’t feel that confident all the time). My only regret is that I lacked a cape. Enjoy this one folks!
Wordless Wednesday – Finger Prick
Week in Review – 4/1/13
Clockwise from top left: Imagine my surprise when I received a thank you gift from Excedrin in the mail! I was a little confused about the part that thanks me for my “patience”. Was there an Excedrine shortage or something? Maybe it’s thanks for being patient during a migraine for the Excedrin to kick-in (like I have any other choice)? Any way you look at it, it’s nice to get free stuff. If any diabetes device or pharmaceutical companies are listening, I like free, surprise, thank you gifts.
I’ve had 2 days and 3 nights of too many low bgs. Last night I had the actual LOW reading on my Dexcom. It was scary, it was there for a really long time, and even when I started to come up, it was snail-pace slow. I joked yesterday that Glucolift tablets are becoming a food group in my world. The real joke is… I’m not joking.
Happy Blue Friday! New blue shirt, blue Dexcom and sort-of bluish glasses.
What do you think that last photo is from? Awful finger prick? A girl who’s using a very blunt lancet? Nope, got my finger tip caught between and anvil and a rubber mallet the other night. It really does look like a D injury though doesn’t it? Gotcha!
Happy Friday!
Snorkeling Pump – Where The Pump Are You?
- I actually remembered not to smile (breaks the seal on the face mask and it fills with water otherwise. My eyes and nose were drowning in a few of the pics).
- My pump and I did well snorkeling although I was quite cold (wetsuit shirt was nice, wetsuit pants would have been nice as well).
- I travel with a back-up pump (which was back at the hotel).
- I had 2 syringes and a vial of insulin with me on the boat.
- I had lots of reasons for choosing my pump. One of the main ones is so I can do stuff like this. I don’t like leaving my pump behind, in this case, with strangers on a boat. My pump is a thrill seeker. He insisted on snorkeling. Who was I to say no?
- Snorkeling (well swimming) drops my bg like nobody’s business (OK it’s none of your business but I stayed in the 130-80 range the whole time). Temporary basal rates are effing awesome.
- Under bolusing (majorly) for lunch was unnecessary. Lesson learned when I returned from second round of snorkeling.
- Having snorkeling dreams for days (well nights) after snorkeling is most excellent.
- My Dexcom did well in the Pacific ocean as well and picked up my bg as I approached the boat. Not bad G4, not bad at all.
- I believe in tons of Ziplock baggies.
- Diabetes may slow me down a bit every once in a while. It does NOT stop me.
- I may not be Aquaman but I may respond to Aqua-Robot-Lady.
Birthday Vacation
This past week I was on vacation to escape my birthday (which I spent most of, yesterday, on an airplane). Below are my vacation contributions to #wherethepumpareyou which is a Twitter thing where you photograph your insulin pump in a location. Both my insulin pump and I had a great and active vacation.
NEDA Week- A Week Late
I read blog posts from fellow DOC-ers last week regarding National Eating Disorder Awareness Week. During a busy work week, I read most of them while in bed, late at night, which led to all sorts of weird food dreams, but the point is, I have found the posts fascinating, heart-felt, and painfully honest. Every post, I related to on some level. Reading those posts inspired some self reflection and prompted me to review my own own relationship with food over my 33 years with diabetes.
It is no wonder why so very many diabetics are challenged with food issues. The supreme emphasis on food every single day seems like the perfect vehicle for an eating disorder. When I was diagnosed in 1979, my parents were trained on the “exchange system”. This carb counting stuff we now do, didn’t exist in my world. My “quick” acting insulin was Regular which peaked HOURS after it was injected. I remember morning recess in grammar school, everyone speed walking (no running in the halls), to get outside while I sat in the classroom eating my peanut butter on graham crackers. I would eat them so quickly, with most of my peanut butter snack/mess stuck to the roof of my mouth, knowing that as soon as I was finished, I could go out for recess too. How could I not have food issues?
Like so many of my diabetic peers discussed last week, I also snuck food as a teenager. My sneak food was ice cream. I would eat it in my room while I did my homework and hide the bowl and spoon under my bed. When my Mom made us do major room cleanings, she would unearth a spoon fossilized to a glass bowl from under my bed. Sometimes the spoons were so ice cream glued that you could pick up the bowl just by lifting the spoon handle. I can remember lying and saying it was a cereal bowl from my night time snack (oh yeah I ate a snack after dinner and before bedtime). In the days of the exchange system, cereal was somehow considered healthy while ice cream was a big no-no.
When I was a sophomore in college, in a conversation with my dormmates, something came up about cotton candy. I said how I’d never had it but I was too grossed out by the idea of eating cotton. Everyone looked at me bewildered. They asked what I thought cotton candy was made from. I explained how its pulled cotton saturated in colored sugar. The girls howled with laughter. A friend explained how cotton candy is spun sugar. I thought she was wrong. She said there was NO cotton involved. I still thought she was wrong. She told me how she’d had a summer job where she made cotton candy, NO cotton. I started thinking I might have been given bad information. I called my Dad. Our conversation went a little bit as follows:
Me: Dad, does cotton candy have cotton in it?
Dad: Ummm no.
Me: DAD! You TOLD me it was made out of cotton.
Dad: When was this?
Me: What do you mean when was this? I’m 19 years old and my dormmates are all laughing at me because I was just adamant that cotton candy is sugar laced cotton, like cotton balls. YOU told me that! You told me at the Spring Spectacular in 2nd grade!!!
Dad: Well I don’t remember telling you that, but IF I did, it was because you couldn’t have it and I didn’t want you to feel like you were missing something.
So yes, did I have a healthy relationship with food while I was growing-up? Other than practically choking to death on peanut butter laden graham cracker sandwiches, hiding melting ice cream under my bed, and possibly being the most naive sophomore in my college, yes, I had a wonderful relationship with food.
During college, my weight went up and down. For the most part it went up, not down. After I graduated, I worked with a woman who was A Dieter. She started doing Atkins. She lost weight. I was used to trying to eat lower carb since it made my blood glucose levels more stable. I read everything I could about low carb and diabetes. I started following the Atkins diet too. I lost weight. I took less insulin.
When I decided to get an insulin pump (after years of wavering on the idea), my doctors pushed me to eat more carbohydrates. As I grew accustomed to my pump, I also realized I had a heck of a lot more flexibility with when and what I could eat (or graze-eat). In the blink of an eye, I found myself embracing the idea of eating whatever I wanted. I ate cookies for breakfast… a lot. I would read the nutrition info and beep, beep, beep, perfect bg’s as I wiped the cookie crumbs from my mouth.
Shortly after my I-have-a-pump-I-don’t-need-to-take-a-zillion-shots eating fest started, I had my first true heartbreak and suddenly eating was painful. I simply couldn’t eat. I ate so little a day it was alarming. I NEVER felt well when I ate. I got really skinny. I went to therapy when my CDE sat me down and told me they all were worried. Therapy helped.
I didn’t want to gain back all the weight I’d lost, but I wanted to be healthy. I went to yoga. I tried different types of yoga. I ate more. I learned about me. I started to put more weight than I wanted back on. My co-worker started the Fat Flush Diet. She talked about it A Lot. I read the book and did the diet too. I felt obsessive about what I ate and had lists and lists of foods I didn’t eat. I found myself weighing myself morning and night. I combined the diet with Atkins. I couldn’t get rid of any of the weight I’d gained. I did more yoga. I got a treadmill in my office and walked. I switched to The South Beach diet. Still there was little change in my weight.
I learned from all these diet books, I learned lots of conflicting info too, I tried hybrids of all these diets. The control I lacked in my personal life was all directed into control of what I ate. I ate a lot of diet foods. I ate weird and expensive foods. I made recipes for “normal foods” out of ingredients I could only only buy in “health food” stores.
I’m not sure when exactly it happened. I dated again, I had relationships that ended in heartbreak but my weight wasn’t affected like that first time. I tried different exercises. I moved. I lived my life. My weight went up and down but not huge fluctuations.
By the time I reached my early 30s, other things stole my attention and obsessing over diets went out the window. You know what else went out the window? My scale. I don’t weigh myself. I know when I’ve gained weight because my clothes get tight. I decided to make an investment in myself. I got a trainer at my gym. If I could justify all the money spent on health foods, I could splurge on a trainer. A trainer taught me to really use the equipment at my gym (I’m paying to go there, why didn’t I know how to use 1/2 the equipment).
Keeping myself on a schedule to workout is important to me. It’s a physical and mental need too. My relationship with food has improved over the years. I still don’t have a great relationship with peanut butter (especially the fancy kind). Ironic that the food I raced to eat at recess is the demise of my will power. I don’t store a lot of food in my home (it’s NYC, I don’t have much space for anything) and I don’t eat all the food on my plate and that’s OK. I try to mix protein with my carbs because it gives me stability with my bgs and I think helps my energy levels. Oh, and I have still have never had cotton candy. It may NOT be made from cotton balls, but its hard to un-see that one.
Photo Week in Review 2/11/13
From top left: There was a day this week that the Dexcom graph looked THAT nice. 100 seems like a pretty special number, worthy of Photo of the Week.
This is a pic of what a diabetes headache looks like. At one point towards the end of that graph I was on a very crowded subway at rush hour. I could feel something vibrating in my front pocket and something also vibrating on the back of my waistband. My winter coat is long, zipped up, and there was no room to move (plus I’m paranoid of losing my Dex on the subway). When I got to my stop and had a chance to look, the Dexcom was alarming with a Double Arrow down at 137. My pump on my back waistband was alarming because the low battery had turned to “your battery is DEAD”. Yikes! I drank an entire bottle of cranberry juice in line at the bodega and luckily had an extra lithium battery in my purse. A very wicked headache indeed. A few hours later I was crashing again. Ugh.
That baby carrot came out of the bag that way, last night (doggie snack time). It seemed appropriate as it was Valentine’s Day.
When my Valentine’s Day plans got canceled, I decided it was time to be brave. I did my first site insertion in my (sort of) back area. It’s only taken me almost 13 years of pumping and a few months of considering this spot to finally just do it. Truth be told, I don’t like it. I’m wearing ridiculously low jeans today because the site placement is just in-the-way. It annoyed me multiple times in the gym this morning. The site itself isn’t absorbing any better and in my opinion, the absorption seems better on my upper tummy. Also, I highly dislike this photo. I am as pale as Casper and definitely need to spend more time in the gym before my vacation! Next back site, I think I’ll try lower, more at the top of my butt.
Happy Friday! xo