Week In Review 3/25/13

I haven’t done a photo Week In Review in a while.  I had a lot of pics to choose from this week! D week memeFrom top left: Beginning of the week site change had a surprising result.  It didn’t hurt and insulin was being absorbed just fine.  Ahhh, D surprises!

My second site change of the week left me with another mark.  This one I think was made worse by sitting in my skinny jeans for way too long.  Let’s face it, “skinny jeans” is a really misleading term.  They do not make me look skinny.  They should be called what they are, “too tight jeans”.  Either way, my vacation is over and I need to get back to more balanced eating and my normal workout routine.  Skinny jeans?  Currently too tight.

The next pic is every diabetic’s nightmare.  BG of 82 sounds pretty nice… Double arrow down? NOT nice, not nice at all.  This image is EXACTLY why I love having a CGM.  If my meter said 82, I might take a little snack (like 5 grams of carb).  Double arrow down rings in my head like this, “EMERGENCY SITUATION IS COMING, REACT NOW!!!!”.  I was fine and dandy folks.  All good!

Last image has nothing to do with diabetes.  That grumpy little girl is my sister when she was a baby (please note: you don’t see me in the photo, but this was the night of my Senior Prom which is just bizarre).  M text me this week the image of my sister, and then that Grumpy Cat who seems to be all over the interwebs.  This pic absolutely positively cracks me up.  Seriously I can not look at Grumpy Sis/ Grumpy Cat, without smiling.  We all could use a smile right?

Have a great weekend folks! xo

Snorkeling Pump – Where The Pump Are You?

Pump snorkelA few items about this photo:

  1. I actually remembered not to smile (breaks the seal on the face mask and it fills with water otherwise.  My eyes and nose were drowning in a few of the pics).
  2. My pump and I did well snorkeling although I was quite cold (wetsuit shirt was nice, wetsuit pants would have been nice as well).
  3. I travel with a back-up pump (which was back at the hotel).
  4. I had 2 syringes and a vial of insulin with me on the boat.
  5. I had lots of reasons for choosing my pump.  One of the main ones is so I can do stuff like this.  I don’t like leaving my pump behind, in this case, with strangers on a boat.  My pump is a thrill seeker.  He insisted on snorkeling.  Who was I to say no?
  6. Snorkeling (well swimming) drops my bg like nobody’s business (OK it’s none of your business but I stayed in the 130-80 range the whole time).  Temporary basal rates are effing awesome.
  7. Under bolusing (majorly) for lunch was unnecessary.  Lesson learned when I returned from second round of snorkeling.
  8. Having snorkeling dreams for days (well nights) after snorkeling is most excellent.
  9. My Dexcom did well in the Pacific ocean as well and picked up my bg as I approached the boat.  Not bad G4, not bad at all.
  10. I believe in tons of Ziplock baggies.
  11. Diabetes may slow me down a bit every once in a while.  It does NOT stop me.
  12. I may not be Aquaman but I may respond to Aqua-Robot-Lady.

Birthday Vacation

This past week I was on vacation to escape my birthday (which I spent most of, yesterday, on an airplane). Below are my vacation contributions to #wherethepumpareyou which is a Twitter thing where you photograph your insulin pump in a location. Both my insulin pump and I had a great and active vacation.

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NEDA Week- A Week Late

I read blog posts from fellow DOC-ers last week regarding National Eating Disorder Awareness Week.  During a busy work week, I read most of them while in bed, late at night, which led to all sorts of weird food dreams, but the point is, I have found the posts fascinating, heart-felt, and painfully honest.  Every post, I related to on some level.  Reading those posts inspired some self reflection and prompted me to review my own own relationship with food over my 33 years with diabetes.

It is no wonder why so very many diabetics are challenged with food issues.  The supreme emphasis on food every single day seems like the perfect vehicle for an eating disorder.  When I was diagnosed in 1979, my parents were trained on the “exchange system”.  This carb counting stuff we now do, didn’t exist in my world.  My “quick” acting insulin was Regular which peaked HOURS after it was injected.  I remember morning recess in grammar school, everyone speed walking (no running in the halls), to get outside while I sat in the classroom eating my peanut butter on graham crackers.  I would eat them so quickly, with most of my peanut butter snack/mess stuck to the roof of my mouth, knowing that as soon as I was finished, I could go out for recess too.  How could I not have food issues?

Like so many of my diabetic peers discussed last week, I also snuck food as a teenager.  My sneak food was ice cream.  I would eat it in my room while I did my homework and hide the bowl and spoon under my bed.  When my Mom made us do major room cleanings, she would unearth a spoon fossilized to a glass bowl from under my bed.  Sometimes the spoons were so ice cream glued that you could pick up the bowl just by lifting the spoon handle.  I can remember lying and saying it was a cereal bowl from my night time snack (oh yeah I ate a snack after dinner and before bedtime).  In the days of the exchange system, cereal was somehow considered healthy while ice cream was a big no-no.

When I was a sophomore in college, in a conversation with my dormmates, something came up about cotton candy.  I said how I’d never had it but I was too grossed out by the idea of eating cotton.  Everyone looked at me bewildered.  They asked what I thought cotton candy was made from.  I explained how its pulled cotton saturated in colored sugar.  The girls howled with laughter.  A friend explained how cotton candy is spun sugar.  I thought she was wrong.  She said there was NO cotton involved.  I still thought she was wrong.  She told me how she’d had a summer job where she made cotton candy, NO cotton.  I started thinking I might have been given bad information.  I called my Dad.  Our conversation went a little bit as follows:

Me:  Dad, does cotton candy have cotton in it?

Dad:  Ummm no.

Me:  DAD! You TOLD me it was made out of cotton.

Dad:  When was this?

Me:  What do you mean when was this? I’m 19 years old and my dormmates are all laughing at me because I was just adamant that cotton candy is sugar laced cotton, like cotton balls.  YOU told me that!  You told me at the Spring Spectacular in 2nd grade!!!

Dad:  Well I don’t remember telling you that, but IF I did, it was because you couldn’t have it and I didn’t want you to feel like you were missing something.

cotton photo

So yes, did I have a healthy relationship with food while I was growing-up? Other than practically choking to death on peanut butter laden graham cracker sandwiches, hiding melting ice cream under my bed, and possibly being the most naive sophomore in my college, yes, I had a wonderful relationship with food.

During college, my weight went up and down.  For the most part it went up, not down.  After I graduated, I worked with a woman who was A Dieter.  She started doing Atkins.  She lost weight.  I was used to trying to eat lower carb since it made my blood glucose levels more stable.  I read everything I could about low carb and diabetes.  I started following the Atkins diet too.  I lost weight.  I took less insulin.

When I decided to get an insulin pump (after years of wavering on the idea), my doctors pushed me to eat more carbohydrates.  As I grew accustomed to my pump, I also realized I had a heck of a lot more flexibility with when and what I could eat (or graze-eat).  In the blink of an eye, I found myself embracing the idea of eating whatever I wanted.  I ate cookies for breakfast… a lot.  I would read the nutrition info and beep, beep, beep, perfect bg’s as I wiped the cookie crumbs from my mouth.

Shortly after my I-have-a-pump-I-don’t-need-to-take-a-zillion-shots eating fest started, I had my first true heartbreak and suddenly eating was painful.  I simply couldn’t eat.  I ate so little a day it was alarming.  I NEVER felt well when I ate.  I got really skinny.  I went to therapy when my CDE sat me down and told me they all were worried.  Therapy helped.

I didn’t want to gain back all the weight I’d lost, but I wanted to be healthy.  I went to yoga.  I tried different types of yoga.  I ate more.  I learned about me.  I started to put more weight than I wanted back on.  My co-worker started the Fat Flush Diet.  She talked about it A Lot.  I read the book and did the diet too.  I felt obsessive about what I ate and had lists and lists of foods I didn’t eat.  I found myself weighing myself morning and night.  I combined the diet with Atkins.  I couldn’t get rid of any of the weight I’d gained.  I did more yoga.  I got a treadmill in my office and walked.  I switched to The South Beach diet.  Still there was little change in my weight.

I learned from all these diet books, I learned lots of conflicting info too, I tried hybrids of all these diets.  The control I lacked in my personal life was all directed into control of what I ate.  I ate a lot of diet foods.  I ate weird and expensive foods.  I made recipes for “normal foods” out of ingredients I could only only buy in “health food” stores.

I’m not sure when exactly it happened.  I dated again, I had relationships that ended in heartbreak but my weight wasn’t affected like that first time.  I tried different exercises.  I moved.  I lived my life.  My weight went up and down but not huge fluctuations.

By the time I reached my early 30s, other things stole my attention and obsessing over diets went out the window.  You know what else went out the window?  My scale.  I don’t weigh myself.  I know when I’ve gained weight because my clothes get tight.  I decided to make an investment in myself.  I got a trainer at my gym.   If I could justify all the money spent on health foods, I could splurge on a trainer.  A trainer taught me to really use the equipment at my gym (I’m paying to go there, why didn’t I know how to use 1/2 the equipment).

Keeping myself on a schedule to workout is important to me.  It’s a physical and mental need too.  My relationship with food has improved over the years.  I still don’t have a great relationship with peanut butter (especially the fancy kind).  Ironic that the food I raced to eat at recess is the demise of my will power.  I don’t store a lot of food in my home (it’s NYC, I don’t have much space for anything) and I don’t eat all the food on my plate and that’s OK.  I try to mix protein with my carbs because it gives me stability with my bgs and I think helps my energy levels. Oh, and I have still have never had cotton candy.  It may NOT be made from cotton balls, but its hard to un-see that one.

 

Photo Week in Review 2/11/13

review

From top left: There was a day this week that the Dexcom graph looked THAT nice.  100 seems like a pretty special number, worthy of Photo of the Week.

This is a pic of what a diabetes headache looks like.  At one point towards the end of that graph I was on a very crowded subway at rush hour.  I could feel something vibrating in my front pocket and something also vibrating on the back of my waistband.  My winter coat is long, zipped up,  and there was no room to move (plus I’m paranoid of losing my Dex on the subway).  When I got to my stop and had a chance to look, the Dexcom was alarming with a Double Arrow down at 137.  My pump on my back waistband was alarming because the low battery had turned to “your battery is DEAD”.  Yikes!  I drank an entire bottle of cranberry juice in line at the bodega and luckily had an extra lithium battery in my purse.  A very wicked headache indeed. A few hours later I was crashing again.  Ugh.

That baby carrot came out of the bag that way, last night (doggie snack time).  It seemed appropriate as it was Valentine’s Day.

When my Valentine’s Day plans got canceled, I decided it was time to be brave.  I did my first site insertion in my (sort of) back area.  It’s only taken me almost 13 years of pumping and a few months of considering this spot to finally just do it.  Truth be told, I don’t like it.  I’m wearing ridiculously low jeans today because the site placement is just in-the-way.  It annoyed me multiple times in the gym this morning. The site itself isn’t absorbing any better and in my opinion, the absorption seems better on my upper tummy.  Also, I highly dislike this photo.  I am as pale as Casper and definitely need to spend more time in the gym before my vacation!  Next back site, I think I’ll try lower, more at the top of my butt.

Happy Friday! xo

 

Wordy Wednesday

I liked this too much to save it until tomorrow. Wordless Wednesday? Not today folks!

“We are not here merely to make a living. We are here to enrich the world with a finer spirit of hope and achievement- and we impoverish ourselves if we forget the errand.”

Woodrow Wilson (1856-1924); 28th U.S. President

Photo Week in Review 1/21/13

Just some images that explain this week (and happy Friday).

Wk review 1.21

From top left: NEW D toys matched up for the first time since my robot self was upgraded in December.  I love that they matched at an awesome number (yes, I have doggie sheets).

My Dec G4 sensor was more OFF than stuck ON me by Tuesday.  I was waiting it out since I still hadn’t received new sensors and was growing concerned.  I’d only received 4 sensors with my initial shipment (unlike my 7+ where I got 3 boxes from the beginning).

Look what arrived!  Yep, a phone call and less than 48 hours and *presto*!  Sensors Ahoy!

It’s Friday which means Blue Friday and me taking off pics of myself at my desk.  Since it is FREEZING in my office, I will be wearing this cozy scarf all day and possibly gloves and my hat with ear flaps.

The Friend

Monday night = gym time!  Last night, while retrieving my stuff from my locker to head home, I overheard some girls talking.  From the 2 seconds of conversation I paid attention to, I quickly realized they were early 20-somethings, like most people at my gym seem to be.  I turned my body to partake in my ritual of attempting my locker combination only to have it finally open on the 3rd or 4th try.  As I did this, I realized that the banter between the two girls near my locker had become one-sided.  One girl continued talking while the one closer to me seemed to be stumbling over her words and then abrupt silence.  It hit me immediately what was happening, as this exact scenario has happened multiple times over the years.  I imagined it as this:

Girl #1 was standing closest to me.  As I attempted to open my jerk of a gym lock, the back of my arm was directly in her view.  She saw the Dexcom sensor and was distracted enough to cause her to lose her thought as she conversed with her friend.  As Girl #2 asked her what the heck she was talking about or if she was even paying attention, Girl #1 frantically tried to motion with either her eyes or head or both, to her friend what she is staring at without saying anything (being polite).  Then Girl #2 saw it and my lock finally opened.  They returned to talking sort of,  but were staring.  Also note, in this scenario, the Dexcom sensor could be replaced by insulin pump or the Dexcom receiver resting on the bench.  One of these devices has caused an interruption in someone else’s conversation.

Last night though, I got my lock open (on the second try. Woo hoo) and the 2 girls did NOT resume their chatter.  I threw on my scarf and coat and turned to leave.  I took one step and heard a voice, “Is that a continuous glucose monitor?”  WOW was I shocked!  When I had the Dexcom 7+ there was the occasional, “What kind of phone is that?” or a finger pointing at my arm followed by, “Hey does that play music?”.  This time was different.  A continuous glucose monitor? OMG, yes… was this one of MY people?  A sibling or friend of one of MY kind? Or someone in a D related profession?

I spun around and with people walking around me (6pm at the gym in January is nuts I tell you). I told her it was a CGM and she asked if I liked it.  As I started to answer I realized I had both girl’s undivided attention now (along with some other ladies at their lockers) and explained my Dexcom G4.  I told them about my previous experience with a Dexcom 7+ and how less cumbersome the G4 receiver was.  I showed them the screen and felt a sigh of relief when I opened that silly snap case and saw my bg.  I’d suspended my bolus during my workout and now was at 104… whew.  Her friend asked if I still had to “check my finger”.  They both looked a little disappointed when I said how the Dex needs to be calibrated via blood check.  i also explained that the Dex can be “off track” and I can’t trust it over my meter when it comes to bolusing but how incredibly helpful I’ve found the trending arrows.

The original conversation starter said she noticed my pump and that she isn’t on one.  Ahhhhh, she WAS one of my people! And as soon as she said it, her friend added “Yet” and a big smile.  I told them stories of sleeping through a low warning on the Dex 7+ and my boyfriend hearing it and waking me up.  I told them about how what I intend to eat and what I actually eat at a meal can really vary and I’ve found using a pump has made those times run smoother.  The friend (aka Girl #2) asked when I went on a pump and I saw the look on the face of Girl #1.  I remember making that very face.  Curiosity mixed with fear.  I explained how I’ve been diabetic since I was six and I decided to go on a pump after college, in my mid twenties.  I used all my mentoring JDRF skills mixed with common sense… I explained how it was the right time for me when I decided to get a pump and many people are perfectly successful on MDI.  How I’d flip-flopped back in forth for 2 years trying to decide if I wanted to be a pumper.  How I’m glad now that I made the decision but that I had to do it for myself, in my own time, and not be pushed to do it.  I saw the look of relief on Girl #1’s face.  I wasn’t selling her on it, I was just answering questions and telling relatable anecdotes about my BF eating food off my plate and having the ability to bolus incremental amounts through a meal has been an enormous help to me (like I’m dating the Hamburglar or something).

Girl #2 said if you go on a pump you can always go back to shots right?  I explained how the pump is expensive but mine was covered by my insurance and how I knew people who took pump breaks and go on shots for a bit.  I also explained how I had zero desire to take a pump break and the only time I did was when my pump actually broke and I laughed at my own joke about pump-breaks vs pump-broke (yeah I laugh at my own jokes, so what?).

We chatted a bit and I told them how I’m usually at the gym at this time on a Monday night if they had any more questions, and then it happened, Girl #2 reached across the bench, shook my hand and told me her name.  We all exchanged names and I left, but I kept thinking about what had just occurred as I rushed home (and I regretted that i didn’t give them my business card or contact info).  I’ve spoken to many people over the years about both my using insulin pumps and adding a CGM into my diabetes care.  I’ve spoken to friends-of-friends, I’ve spoken as a JDRF Mentor, and I’ve spoken to people considering pump therapy at the request of my doctor’s office, but I rarely (read:never) get to meet THE FRIEND.

This morning I was thinking about The Friend again.  I was lucky.  When I finally decided to take the pump plunge 12+ years ago, I was still dating my college boyfriend.  He’d lived through my year long thesis project on a non-invasive glucose monitor/ insulin dispensing system.  He’d watched the Minimed videos with me (yes, I said video, as in VHS tape, I am old, what of it?).  Years later when I found myself curious about insulin pumps, and deeply investigating options, he’d been the support I needed to take a leap of faith and learn something new.  THE FRIEND.

I hope I see those girl’s at the gym again.  I hope I see THE FRIEND.  That person who doesn’t flinch at D stuff.  That one person who may not get it, but who is there.  THE FRIEND deserves a pat on the back.  If this Flu season-everyone-has-a-cold stuff didn’t make my germophobia at a level 10, I’d say THE FRIEND really deserves a hug.  Screw germs, hug THE FRIEND.

 

 

 

Thought For Today – Beautiful People

Quote

“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths.

These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern.

Beautiful people do not just happen.”

― Elisabeth Kübler-Ross

Kindergarten

I remember my kindergarten teacher, Mrs. Britton.  She was a heavy set woman who wore thick lensed eye glasses.  Her glasses seemed dwarfed by her face.  I adored her.  It was easy to see that I loved going to kindergarten everyday.  I couldn’t stop skipping.  I was in the big-kids school.  Our classroom had a playhouse.  We sat 4 to a table on tiny chairs at a round table.

I learned how to write my name in cursive while in kindergarten.  I watched my Mom and then emulated her handwriting.  I asked her to write my name in cursive.  She showed me.  Oh, all those swirling letters. A-L-E-C-I-A looked so fancy.  Grown-ups wrote in this code.  I would write like this!  I practiced and practiced.

One day in school, when it was time to write our names on the back of our art projects, I proudly wrote my name in cursive.  Mrs. Britton hung our art in the hallway.  She pulled me aside.  She flipped over my art.  She pointed to my name.  She asked why I wrote my name like that.  I proudly told her and my classmates that I had learned cursive.  She told me not to do it again.  She firmly said I would learn cursive in an older grade and that I needed to stay with my class learning to print.  She looked disappointed.  I didn’t want to disappoint Mrs. Britton.  I was mortified.  Quivering-lip, fighting-back-tears mortified.  I had done something wrong and everyone heard her say it.  When I got home, I cried.

Every week, two kindergarteners were assigned the job of “turning-in” the milk money.  Mrs. Britton collected the money from us, placed our money and parent form in an envelop and then trusted us to walk all the way down the hall to the office.  It was a huge responsibility.

When it was my week to “turn-in” the money, I was elated.  My buddy and I headed to the office.  We walked carefully.  This was an important job.  Actually this was the most important job in kindergarten.  Once we had given the envelop to the office, we began the walk back to our classroom.  We were alone, 2 triumphant kindergardeners, passing the 2nd grade classrooms.  We walked with pride.  As we approached the 1st grade classroom, a boy stepped into the hallway.  I knew him.  His name was Curtis and he had been in the same nursery school with me.  He was a year older.  In nursery school he had a girlfriend.  For the nursery school Halloween party, he was dressed as a groom and his girlfriend was dressed as a bride.  I was in awe of Curtis.  Now he was a first grader.  I smiled at him.  He sneered back.  As we walked past him, he began to speak.  I looked at him and he slowly whispered, “Kindergarten Babies”.  I was floored!  Curtis called me a baby.  I was not a baby.  We continued our walk back to our classroom. it was like the wind was knocked out of me.  Kindergarten Babies?  Kindergarten Babies!  Why would he say that?  We had just been in charge of the milk money.  I was devastated.  According to my parents,  I couldn’t even tell them the story when I came home.  I was crying that hard.  I quivering-lip-sobbed, “He….*sob*, he… *sob*, he called me…*sob*, he said we….*sob*, were Kindergarten… *sob, sob, sob*, KINDERGARTEN BABIES!”

Every teacher after Mrs. Britton dealt with more than just me, they dealt with me and diabetes.  As I listened to the breaking news today, I was dumbfounded by the horrific tragedy which occurred in Newtown, Connecticut.  I listened at my desk while this senseless story developed.  I walked home from work with a heavy heart.   I arrived home, shut the door, sat down, hugged my dog and cried.

Those kids were indeed Kindergarten Babies.  My heart aches for them and their families.  I cry for those children who witnessed this travesty and I hope somehow, some way they remain just that, babies.